£35000 - £36000 per annum
about 1 year ago
*Work collaboratively with external partners for the duration of the project to deliver key associated work packages co-designed with patients.
*Identify and create automated procedures to streamline the functionality of the Ethics Team
*Consult with focus and specialist groups to determine important functionality, processes around secure data sharing, and design user interface for a participant data portal.
*Distil the outputs of all stakeholder feedback for mapping against internal and external policies and to prepare any new policies which the feedback may inform.
*Identify and prioritise appropriate use cases to assess feasibility from a legal, ethical, and regulatory standpoint and identify opportunities as well as potential challenges with the case studies prioritised.
*Keep the key project stakeholders regularly updated with the progress of the work packages through verbal and written updates.
Prepare, maintain, and disseminate high quality documentation and reports that appropriately capture the work packages undertaken in a structured and detailed manner.
*Good understanding of ethics and regulatory roles.
*Research experience including good working knowledge of research governance issues and processes.
*Understanding of relevant statute and relevant law, for example, GDPR and the Mental Capacity Act.
*Experience working with participants or individuals with lived experience of a medical condition.
*Ability to collate and interpret information in multiple formats to deliver tangible outputs, meeting defined goals.
*Ability to work with mixed audiences and tailor interactions appropriately.
*Well organised, ability to prioritise and deliver impactful packages of work.
*Strong written and verbal communication skills.
First degree in social science or equivalent relevant experience.
*Experience working with charities and the NHS.
*Experience in the field of genomics or precision medicine.